CASSIE Juvenile arthritis became a part of our family and our lives in September of 2006. One morning Cassie, then only 20 months old, wouldn’t walk when we took her out of her crib. After a ton of tests, we ultimately received the diagnosis of juvenile idiopathic arthritis. We couldn’t imagine that our little [...]
REBECCA I was diagnosed with Juvenile Arthritis in the September of 2005. I have gone into remission twice in the past 7 years, and am currently in remission right now. Arthritis has caused me physical challenges but also mental ones. Having a chronic disease at such a young age caused me to become mature [...]
ZACHARY Zachary lived with the pain of arthritis for nine months and the symptoms of chronic disease for 19 months before finally being diagnosed with Systemic Onset Juvenile Arthritis at the age of 3 ½. At the time of diagnosis, we had no idea how extensive the impact of arthritis would be on our [...]
SAM It was 2006 and we were living a pretty idyllic life on Bowen Island with our three-year-old, Sam. At the end of the summer he developed a rash on his cheeks. Then wee craters on his knuckles and rash on his knees, elbows, and ankles started to appear. This got worse and worse [...]
ELISE Elise was born with a couple of congenital heart defects that kept her in ICU for four days. Over the last four years, one of the heart conditions healed itself and the remaining hole is still prevalent, but recent tests show that her ECG and EKG "do not match the little thriving girl." [...]
Our fourth annual event drew more than 100 people with some new and many familiar faces. Parents had the chance to hear several informative speakers including Dr. Kathleen O'Neil (who came all the way from Oklahoma) and doctors Jane Gardiner and Ross Petty who gave an excellent talk on uveitis. For the first time parents [...]
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