Alison Legge is a member of the Cassie + Friends Youth Leader Committee. She spoke at Cassie + Friends Family Day 2016 as a youth champion, speaking about the impact chronic disease has had on her mental health. A lot has happened since then, and Alison has learned she is not alone and there [...]
May is Lupus Awareness Month and we reached out to our friend, Lia who is 13 years living with lupus, a rare autoimmune disease. After being diagnosed in 2018, Lia believes everything happens for a reason and there is always a positive in all events of life. [...]
May is Lupus Awareness Month and we reached out to Dr. Lori Tucker of BC Children's Hospital to learn more about this rare autoimmune disease. Thank you, Lori for providing us with this important information. By: Dr. Lori Tucker Systemic lupus erythematosus (also known as ‘lupus’ or SLE) is a rare autoimmune disease. It [...]
How have you felt seeing some of the familiar medications used to treat Juvenile Arthritis and other childhood rheumatic diseases, like Lupus, suddenly in the news? With clinical trials and major news articles now talking about treatments like Actemra and Plaquenil as potential answers to the COVID-19 pandemic, we want to make sure the [...]
During March and April, hospitals, labs and clinics across Canada quickly shifted gears to meet the new realities of patient care in the Covid-19 outbreak. As a result, many families were left with cancelled or postponed appointments, worries about medication shortages and questions about their child’s safety and well being. Now, during the second [...]
This is Kaitlyn - a karate-and-hiking-loving 9 year old. When Kaitlyn was five and a half years old her hands became so swollen that it concerned her parents. She told her parents that she was having on-and-off ankle pain. After months of looking for answers and visiting multiple doctors, Kaitlyn’s parents were referred to London’s [...]
This is Clark - a brave hockey lover from Sarnia, diagnosed with Systemic Juvenile Idiopathic Arthritis. Here are a few words from his parents about his journey today: Throughout his battle, Clark has been on a rollercoaster ride with highs and lows. He has experienced different stages of medications that have provided various results [...]
This is Charlotte - a sweet, strong, yoga-loving six year old from Woodstock, ON. Charlotte was diagnosed with Juvenile Idiopathic Arthritis, Enthesitis-related Arthritis, and Psoriatic Arthritis Flares, and is monitored for uveitis. She doesn’t respond to typical medications. She requires daily physiotherapy and the support of orthotics, ankle braces, and medications. Charlotte's Story: “Charlotte was [...]
Anonymous donor challenges Team Cassie and Friends to rally in support of kids and families. Team Cassie and Friends has just been given a giant boost to our fundraising. An anonymous donor has committed to match dollar-for-dollar every donation made up to $50,000 until the end of July 2019. Even if you are not [...]
Why do we do anything we do here at Cassie and Friends? This update from Dr. Jaime Guzman of BC Children's Hospital (who is now on leg #5 of a 1254km fundraising bike ride from Lake Louise to Vancouver in support of children with Juvenile Arthritis) sums it up perfectly... "For the Kids!" Support [...]
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