What I wish people knew about living with Ankylosing Spondylitis

By |September 1st, 2024|Blog, Ontario, Rare Disease Stories, Stories, Toronto|

In my 7 years of living with Ankylosing Spondylitis since the age of 21, I’ve had to teach a lot of people quite a few things about my illness. It’s a relatively unheard-of form of arthritis in day-to-day life. Most people have heard of Rheumatoid Arthritis, but not usually [...]

#WhyIRun – The Saskatchewan Pediatric Rheumatology Research IDEA Lab

By |August 24th, 2024|#WhyIRun, Research, Saskatchewan, Stories|

#WhyIRun The Saskatchewan Pediatric Rheumatology Research IDEA Lab Did you know that the University of Saskatchewan has one of the longest, continuously operating pediatric rheumatology research programs in the world? Read more to learn why the IDEA lab is proud to partner with Cassie + Friends and support activities like our annual [...]

A Canadian Registry for Autoinflammatory Diseases: The CAN-SAID Initiative

By |August 22nd, 2024|Canada, Rare Disease, Research|

A Canadian Registry for Autoinflammatory Diseases The CAN-SAID Initiative Great news for Canadian autoinflammatory patients of all ages: Canada is getting its own registry for systemic autoinflammatory diseases! What exactly is a systemic autoinflammatory disease? Systemic autoinflammatory diseases (SAID) currently include over 50 rare conditions that are caused by uncontrolled [...]

Fresh Slice Cares…about Juvenile Arthritis

By |August 19th, 2024|Fundraising, News|

Fresh Slice Cares…about Juvenile Arthritis Cassie + Friends is excited to share that Fresh Slice Pizza’s charitable foundation, Fresh Slice Cares, is donating $1600 to help spread Juvenile Arthritis (JA) awareness and keep affected kids active through Team Cassie + Friends! The goal of the Fresh Slice Cares Foundation is to “Help [...]

Radiant Resilience: Isla the JDM Warrior

By |August 4th, 2024|Blog, JDM, Ontario, Rare Disease, Rare Disease Stories, Stories, Toronto|

Radiant Resilience: Isla the JDM Warrior It was fall of 2021 and Isla was 6 years old. Her life was pretty much centred around her unwavering excitement for Halloween and being able to wear her unicorn costume to go trick-or-treating with her best friend, Alice. Over the month of October, [...]

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