It is not easy being rare. Being rare means that there is not a lot of knowledge, research, and treatment options available for youth and families affected by systemic autoinflammatory diseases (SAIDs). And that is exactly what the recently formed Can-SAID advisory group, a branch of Cassie + Friends (C+F), wants to change. [...]
Our family's journey with Juvenile Idiopathic Arthritis (JIA) and genetics doesn’t begin with our son’s experience - it actually begins with mine. I was diagnosed with JIA at the age of 7; I faced a difficult time with poor control of my symptoms, which led to significant damage by the time I was [...]
Congratulations to Jake Shiell and Emma Linsley, recipients of the 2022 Cassie + Friends National Youth Leader Awards! Read Jake and Emma's full bios and project descriptions below. Interested in being considered for an award in 2023? To learn more about the Youth Leader [...]
Thank you to everyone who helped make Giving Tuesday a huge success for children and families affected by Juvenile Arthritis and other rheumatic diseases - including one very special gift we wanted to share with you from eight-year old Iyla. Iyla, from Meaford, Ontario, has been diligently raising money for Cassie + Friends all [...]
Hi! My name is Cassie! That name might sound familiar because my parents started Cassie + Friends after I was diagnosed with juvenile idiopathic arthritis at 20 months. I am now 17 years old, in grade 12, and taking a break from filling out university applications as I write this. Time sure flies. But [...]
Cassie + Friends is proud to introduce our first-ever practicum student, Jillian Wickert. Welcome, Jillian! Jillian is a student at the University of Alberta (U of A) doing a Master’s Degree in Community Engagement within the School of Public Health. Jillian not only has an interest in Juvenile Idiopathic Arthritis (JIA) and chronic illness, [...]
Get Moving with JA! Physical activity is an important component of JA management - and one that often comes with many questions and concerns from families learning how to navigate their disease. One of the most important facts to know is that early detection, intervention and parent support are critical [...]
Three-year-old Katherine can keep up with other kids now, but that wasn't always the case... When Alana noticed her daughter was limping at the playground, she didn't know what to think - especially when the limp didn't go away. She decided to bring her to a doctor to be examined. After weeks of testing [...]
Hey! My name is Josie Fratarcangeli, and I am from Woodstock, Ontario. I was diagnosed with Polyarticular Juvenile Idiopathic Arthritis when I was 4 years old. I am currently 17 years old – and have just “graduated” from London Health Science’s Pediatric Medical Day Unit (PMDU) where I got my monthly infusions of Remicade [...]
Hi! My name is Hayley. I was diagnosed with JIA at the age of 13. Around age 12 I realized that I could not straighten my fingers. Young me was very medically inclined, so after some googling, I diagnosed myself with arthritis. It took a long time to convince the adults in my life [...]
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