October 2024

#WhyIRun – Audrey’s Story

By |October 2nd, 2024|#WhyIRun, Blog, Hamilton, JIA, Ontario, Stories|

#WhyIRun – Audrey’s Story In this #WhyIRun, we hear from the Rose family, who share their daughter Audrey’s journey with Juvenile Idiopathic Arthritis (JIA). Audrey and her family will be participating in our upcoming run/walk at Hamilton’s Road2Hope marathon on November 2, 2024, where they are not only the top fundraiser for [...]

August 2024

July 2024

Fuelled by Purpose: Juvenile Arthritis Mom and Local Entrepreneur Accelerates Race to a Cure

By |July 23rd, 2024|Current Events, Fundraising, JIA, Ontario, Stories|

Fuelled by Purpose Juvenile Arthritis Mom and Local Entrepreneur Accelerates Race to a Cure Alana Hurov’s daughter, Katherine, was diagnosed with Polyarticular Juvenile Idiopathic Arthritis (JIA) at just two years old. Katherine's journey, like that of many children battling rheumatic diseases, has been challenging yet marked by her remarkable [...]

October 2023

Lily’s Journey to Diagnosis, Methotrexate, and Finding A Community of Support

By |October 19th, 2023|Injection, JIA, Medication, Methotrexate, Newly Diagnosed, School, School Toolkit, TMJ|

Meet Lily. One morning, at the young age of 2, our daughter Lily woke up limping and her left knee looked slightly swollen. She didn't seem to show that she was in pain, but was refraining from putting weight on her left leg. We had no idea what happened and didn't recall any [...]

OPT-JIA Premedication Trial

By |October 17th, 2023|Blog, Current Research, Future Research, Injection, JIA, Medication, Research|

When I first heard of the medication Ondansetron, I couldn’t help but think about how its name sounded like a character from the Transformers movies. While this medication doesn’t fight space aliens or have a special effects budget, it does hold the capacity to TRANSFORM lives. How might you ask?Methotrexate is a [...]

June 2023

Youth Story: My experience with JIA and finding Cassie + Friends

By |June 28th, 2023|B.C., Blog, Fundraising, JIA, Movement, Physical Activity, Stories, Vancouver|

"Throughout all of these experiences that I have had with Cassie + Friends, there is one throughline: Understanding. Understanding is a concept not to be underestimated." Meet Ciara. It was after after my body couldn’t row anymore, my hands couldn’t hold the pencil, my joints ached in pain, and after my diagnosis of [...]

Highschool, Football, & Back Pain: Ryan’s Story

By |June 23rd, 2023|B.C., JIA, Newly Diagnosed, Stories, Teen Transitions, Vancouver|

"Explaining this to fellow highschoolers was difficult, often times just resulting in being the butt of the joke. It was hard finding someone who understood and could relate." Meet Ryan. I first started noticing symptoms as early as age 12. At that time, many just advised me that I was going through some growing [...]

Tough as Nails: A Father Reflects on his Two Daughters and Childhood Rheumatic Disease

By |June 5th, 2023|Advocacy, High School, JIA, Post- Secondary, Rare Disease, Stories, TMJ|

"We're very proud of our girls for showing the fortitude needed to not let these diseases define them." Hello families! My name is Mike Wiens, husband to Jesica and father to two girls, Vanessa 24 yrs old, and Sarah 23 yrs old. We're happy to call Port Moody, BC our home since relocating here [...]

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