Life with PFAPA: Kai’s Journey from Diagnosis to Now We’re honoured to share a guest blog from one of our incredible youth in the community, Kai. Diagnosed with PFAPA at just seven years old, Kai faced more than most kids his age. Read more about Kai and his journey below. Looking to [...]
If you follow Cassie + Friends to some degree of closeness, you are probably familiar with our much-used phrase “Juvenile Arthrtis and other rheumatic diseases.” Why say this long-fangled phrase when the majority of people that Cassie + Friends supports have Juvenile Arthrtis? When 10,000 of the 24,000 children in youth with rheumatic disease are [...]
In honour of Autoinflammatory month this August, we are introducing the members of Cassie + Friends’ new Canadian Systemic Autoinflammatory Patient Advisory Group (Can-SAID). We are beginning with autoinflammatory patient and parent and Can-SAID board chair, Ian Stedman. Ian Stedman is an autoinflammatory patient and parent. Always sick as a child, Ian had a [...]
Meet Oliver! A vibrant young boy with autoinflammatory disease living in Williams Lake, BC! Oliver has always been the type of child that brings joy to everyone around him. We couldn’t go to the grocery store without the smiling baby drawing everyone near. His first year of life was good. He was a perfectly [...]
He's better than he has been... Written by: Sara Ethier"I wrote this piece to share my son’s journey of living with a rare, one in a million Autoinflammatory Disease.Rare means that there is not a lot of research or treatment options available to children like my son who suffer. I appreciate the small steps [...]
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