This blog was originally posted by the Centre for Blood Research website on November 5, 2020 By Sarah Bowers, Junior Researcher, Brown Lab at BCCHRI As health researchers, many of us are familiar with the term “patient-oriented” research and recognize the value of engaging various stakeholders in the research process1. But what does patient-oriented research look [...]
The Scotiabank Home Stretch is on! As we near the finish line of the Calgary and Vancouver 2020 virtual runs, we’d like to sincerely thank all 160+ runners and 673 donors who’ve stepped up for a pain-free future for kids with Team Cassie + Friends! With 2019 on record as our strongest year yet [...]
Are you wondering how your child can learn to manage pain on their own? Is your teen with rheumatic disease looking for a way to stay motivated, monitor their symptoms and track how they’re feeling on a day-to-day basis? We’ve teamed up with SickKids on a research study to bring the iCanCope with Pain [...]
Moving Research Findings into Clinical Care By: Dr. Elizabeth Stringer The Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) is a research network made up of pediatric rheumatologists and other researchers. Past, present, and future research will lead to discovering new information about rheumatic conditions including long-term outcomes, medication side effects, ways to improve quality [...]
‘Is Team Cassie + Friends now a Canada-wide event?’ (and other great questions we hope will make you want to join our virtual team!) With Team Cassie + Friends now a 100% virtual event due to COVID-19, we’ve been getting some great questions from families, rheumatology teams and other friends wanting to learn more [...]
Alison Legge is a member of the Cassie + Friends Youth Leader Committee. She spoke at Cassie + Friends Family Day 2016 as a youth champion, speaking about the impact chronic disease has had on her mental health. A lot has happened since then, and Alison has learned she is not alone and there [...]
May is Lupus Awareness Month and we reached out to Dr. Lori Tucker of BC Children's Hospital to learn more about this rare autoimmune disease. Thank you, Lori for providing us with this important information. By: Dr. Lori Tucker Systemic lupus erythematosus (also known as ‘lupus’ or SLE) is a rare autoimmune disease. It [...]
How have you felt seeing some of the familiar medications used to treat Juvenile Arthritis and other childhood rheumatic diseases, like Lupus, suddenly in the news? With clinical trials and major news articles now talking about treatments like Actemra and Plaquenil as potential answers to the COVID-19 pandemic, we want to make sure the [...]
During March and April, hospitals, labs and clinics across Canada quickly shifted gears to meet the new realities of patient care in the Covid-19 outbreak. As a result, many families were left with cancelled or postponed appointments, worries about medication shortages and questions about their child’s safety and well being. Now, during the second [...]
team cassie + friends Hamilton Run/walk alongside McMaster Children's Hospital Rheumatology Clinic Team in support of kids and families affected by juvenile arthritis and other rheumatic diseases in the Around the Bay Road Race! Join us for North America's oldest road race and charity challenge where we will be stepping [...]
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