July 2022 Update: Medication Alert Dear Community, Please find below an important message from our Medical Advisory Committee on behalf of Canadian Pediatric Rheumatologists. ***MEDICAL ADVISORY UPDATE*** July 2022 Re: Actemra (tocilizumab) Shortage There is a shortage of the subcutaneous form of Actemra (tocilizumab) in Canada. This is likely to last several weeks at [...]
An exciting raffle is coming soon! Help Cassie + Friends transform kids' lives through cutting-edge research, education and unprecedented connections for the childhood rheumatic disease community across BC. You might just win 3 nights at the luxurious Fairmount Chateau Whistler. Please email ciara@cassieandfriends.ca if you have any questions. [...]
At Cassie + Friends, we're transforming kids’ lives and an A+ team. As National Manager, Events and Fundraising, you be a real champion for kids and families affected by Juvenile Arthritis (JA) and other childhood rheumatic diseases. You'll drive revenue growth coast-to-coast by executing our national annual giving strategy, fuelling peer-to-peer fundraising and not being [...]
There are lots of ways to show your support for the Juvenile Arthritis community on #GivingTuesday - like, share, educate and, of course, donate. To get inspired, we thought you might like to meet Jeremy from our Calgary CREW. On Nov 30th, we hope you'll join Jeremy and our CREW of parents/friends all across [...]
The Beginning As a toddler learning to walk, Audrey caught on pretty fast. By her 1st birthday she was already zooming around with impressive coordination and balance. When we noticed that she was limping on-and-off at 18 months of age, we knew something was up. Her right ankle was swollen so we decided to [...]
6.5 million people are affected by arthritis in Canada and about 24,000 of them are children. Cassie + Friends is just for them. Kids like Audrey (pictured right) - diagnosed at just 18 months - need our help to make sure their health and futures are a priority, even beyond the dedicated care from [...]
Marissa has joined us on Team Cassie + Friend in the 2021 virtual run/walk for kids and families affected by juvenile arthritis. Read why she's stepping up for her daughter, Charlotte, and all youth affected by juvenile arthritis. When my daughter, Charlotte was just 2 years old, she had a big swollen toe. We [...]
Every three in 1000 Canadian children will be diagnosed with a rheumatic disease like Juvenile Arthritis, Lupus, Fever Syndromes, Vasculitis, JDM and more. Some will develop a related eye condition that, left untreated, can cause blindness. Up to 60% will have active disease into adulthood. This March, we’re asking you to stand with us [...]
#RareFinds w/ @DrPedsRheum Did you know it can take up to 17 years for research to trickle from journals and publications into your child’s clinic appointment? When we heard the recent American College of Rheumatology (ACR) Meeting was a “big one for Pediatric Rheumatologists,” we wanted to know why. So we asked Dr. Herman [...]
This blog was originally posted by the Centre for Blood Research website on November 5, 2020 By Sarah Bowers, Junior Researcher, Brown Lab at BCCHRI As health researchers, many of us are familiar with the term “patient-oriented” research and recognize the value of engaging various stakeholders in the research process1. But what does patient-oriented research look [...]
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