NEWS RELEASE

Two Canadian teams awarded new funding to study mental illness in youth with rheumatic diseases.

Brain Canada and Cassie + Friends unveil the recipients of the Addressing Mental Health in Paediatric Rheumatic Diseases Team Grants program.

Source: Brain Canada

MONTREAL, April 10, 2024 (GLOBE NEWSWIRE) — Brain Canada and Cassie + Friends are pleased to announce the recipients of the Addressing Mental Health in Paediatric Rheumatic Diseases Team Grants program. This year’s awardees are Roberta Berard, from the London Health Science Centre, and Mark Ferro, of the University of Waterloo. Both teams are advancing efforts to better prevent, diagnose, and treat mental illnesses in children and young adults with rheumatic diseases such as juvenile idiopathic arthritis and lupus. These conditions affect approximately 24,000 children and youth across Canada, impacting their daily lives and overall well-being.

“Together with Cassie + Friends, we are proud to fund these important research initiatives,” states Dr. Viviane Poupon, President, and CEO of Brain Canada. “Our partnership reaffirms our dedication to supporting groundbreaking research that has the capacity to profoundly improve the lives of Canadian youth navigating mental health challenges.”

“We’re thrilled to announce the recipients of our new mental health grants, which mark a significant step forward in our mission to transform the lives of children and families living with juvenile arthritis and other rheumatic diseases,” says Jennifer Wilson, Executive Director of Cassie + Friends. “These grants will empower us to further our commitment to providing comprehensive care and resources, ensuring that no child or family feels alone in their journey.”

Despite the high prevalence of co-occurring mental illnesses in pediatric rheumatic diseases, estimated at up to 40 percent, there remains a lack of understanding surrounding their development, early identification, and appropriate treatment options.

“As someone living with a rheumatic disease diagnosed in childhood, there was no guidebook on how to navigate the uncertainty surrounding my illness and the toll it would take on my mental health,” says Alison Legge, a 28-year old youth leader in the Cassie + Friends Network. “Arthritis is so much more than the physical pain or symptoms. There was a direct correlation between my physical symptoms increasing and my mental health deteriorating.”

With a total funding envelope of $480,000, Cassie + Friends and Brain Canada will support two team grants of $240,000 each over two years.

About the projects:

• Roberta Berard, London Health Science Centre:
  The project aims to understand the comorbidity of mental health and disease in a sample of children with juvenile idiopathic arthritis (JIA) and their primary caregiver(s). Dr. Berard and her team will provide children with JIA and their caregiver(s) an innovative intervention called Making Mindfulness Matter (M3©). M3© teaches parents new ways to handle stress and helps kids manage emotions and build positive relationships. Participation in the program may improve health-related quality of life and mental health symptoms (for example anxiety, depression and stress) in the child and their caregiver. The study will compare those in the program to a waitlist group. Results could lead to better mental health support for families dealing with JIA.
• Mark Ferro, University of Waterloo:
  This study aims to understand the mental health of children with juvenile idiopathic arthritis (JIA) by tracking changes over time, exploring caregivers’ and children’s perspectives, and testing the accuracy of the Emotional Behavioural Scales (EBS) in measuring mental health in childhood JIA. These findings could improve early identification and treatment of mental health conditions in children with JIA.

About Brain Canada:
Brain Canada plays a unique and invaluable role as a national convenor of those who support and advance brain research. A greater understanding of how the brain works contributes to the prevention, diagnosis, treatment, and cure of disorders of the brain, ultimately improving the health outcomes of people in Canada and around the world. Visit Braincanada.ca @BrainCanada

About Cassie + Friends:
Cassie + Friends’ mission is to transform the lives of children and families affected by Juvenile Arthritis (JA) and other rheumatic diseases through research, education, connection and support. Working hand-in-hand with patients, caregivers, healthcare professionals and researchers across every province and territory in Canada, we’ve created a vibrant, engaged and connected community that helps kids, teens, young adults and their families face the ups and downs of life with a chronic condition – so that no child has to live in pain alone. JA is a leading cause of chronic disability in kids in Canada, affecting 24,000 children, and deserves far more awareness, resources and research into a cure. To learn more and join our mission, please visit cassieandfriends.ca @CAFSociety

Media Contact:

Jennifer Wilson, Executive Director
Cassie + Friends
604.617.1382 | jennifer@cassieandfriends.ca

Brielle Goulart, Communications and Marketing Officer
Brain Canada
450-915-2253 | Brielle.goulart@braincanada.ca

A photo accompanying this announcement is available here.