Did you miss out on our live Uveitis session? Looking for a refresher? Or a newly diagnosed family looking for more information? Watch the live recording below. What can you expect from Uveitis?
Hear about uveitis (eye inflammation) associated with JIA from Dr. Alan Rosenberg, Pediatric Rheumatologist. You’ll learn where the inflammation occurs, what the risks of the inflammation and treatments are, and get a glimpse into the latest uveitis research.
You’ll also hear from a former patient of Dr. Rosenberg’s about their firsthand experience with uveitis.
Webinar Recording Time Stamps
Don’t have time to watch the full video? No problem! Below you will find all the questions our panelists were asked with the appropriate time stamp.
0:00 Opening remarks from Cassie + Friends Executive Director, Jennifer Wilson
4:20 Introduction of Speakers Becki Zerr and Dr. Alan Rosenberg
6:40 Becki Zerr: JIA and Uveitis Diagnosis and experience
17:38 Becki’s advice to parents
18:25 Becki’s advice to patients
19:16 Becki’s advice to doctors, researchers and healthcare professionals
19:37 Becki’s closing remarks
19:54 Dr. Alan Rosenberg
20:10 The Story of Jessica (JIA and Uveitis)
22:59 Becki’s Story by Dr. Alan Rosenberg
23:40 Research of Uveitis Associated with JIA
24:33 How the eye works
24:50 3 Main layers of the eye
26:35 Anterior Uveitis
27:00 Panuveitis
27:11 Risk Factors and characteristics of Uveitis Associated with JIA
27:47 Why does joint inflammation and eye inflammation occur together?
28: 24 Types I and II Collagens
31:28 Linking arthritis, uveitis, ANA, young onset age
34:15 ERA and Uveitis Research Insight
36:09 Research Updates
37:00 Summary from Dr. Alan Rosenberg
41:00 How important is it to keep checking for Uveitis when a child’s arthritis has been inactive?
42:58 Does Uveitis have flare ups, does it behave in a similar fashion as JIA?
46:33: Is there anything that parents can do to monitor at home? When there are symptoms, what were some of things that helped you find relief?
50:02 Why are there such long wait times in the ophthalmologist office?
52:31 Our daughter cannot handle even the slightest bit of brightness. Is light sensitivity common with uveitis?
55:22 Is vision affected differently than in common near or far sightedness, or does it just cause general blurriness?
57:58 We’ve been using an optometrist regularly (quarterly) for our young child, they use a slit lamp, should we switch to an ophthalmologist? Are there any long term side effects from slit lamp check ups?
59:50 Based on your experience, do you have any help for parents wanting to help their kids at these appointments and how did you handle eye drops as a kid?
1:01:48 When my daughter is off her biologics medications, she often gets uveitis, when she goes back on her medication, it clears up. From the medical perspective, with the introduction of biologic medication, have you seen the number and degree of uveitis actually go down?
1:04:22 Have there been studies about the role of nutrition and uveitis?
1:06:06 The use of steroids. Are steroids drops the only thing keeping uveitis at bay?
1:08:52 Is monitoring for uveitis once a child has been diagnosed life long. Is it uveitis ever gone or is there a time when you stop worrying about it?
1:12:15 What is the chance of uveitis causing blindness if not caught early and treated?
1:13:25 What is your biggest hope for the future?
Session Speakers:
Dr. Alan Rosenberg, Pediatric Rheumatologist
Dr. Alan Rosenberg is a pediatric rheumatologist caring for Saskatchewan children and youth with various forms of arthritis and related rheumatic diseases. Additionally, Dr. Rosenberg directs the activities of The Pediatric Rheumatic Disease Research and Innovation Laboratory at the University of Saskatchewan, which conducts a variety of projects, including those that aim to advance knowledge about uveitis in childhood arthritis. He also is a valued member of the Cassie + Friends community where he helps to provide the most current and evidence-based information to youth and families.
Becki Zerr, Patient Speaker
Becki Zerr was diagnosed with Juvenile Arthritis and Uveitis at age 3. As a past patient of Dr. Alan Rosenberg, Becki will be speaking on her own experience with Uveitis including vision loss, treatments and advice to parents. We invite you to get to know more about Becki before the LIVE event by reading her feature story and/or listening to the breathtaking first episode of her brand new podcast, The Blind Reality, as she talks about her experience on the day she lost her sight.
