This expert-led session is for anyone interested in learning more about what’s involved in the transition from pediatric to adult care and how you and your medical team can work together to ensure a smooth and successful process.
From this session you will:
+ Hear directly from parents and young adults about their real-life transition experiences
+ Gain insight from an expert at SickKids about how you and your child/teen will be prepared to graduate from pediatric care
+ Meet the JIA Transition Clinic team from Women’s College Hospital who will share the in and outs of what happens at clinic and how they will support you
0:00 Welcome from Cassie + Friends Executive Director, Jennifer Wilson
4:35 Introduction of Patient Speaker, Morgan Harris
5:11 Morgan Harris JIA Patient Speaker
13:30 Morgans tips for teens
16:05 Introduction Speaker, Pediatric Rheumatologist, Dr. Lynn Spiegel (SickKids Hospital)
16:40 Dr. Lynn Spiegel Crossing from Pediatric to Adult Health Care
18:05 Importance of Transition Planning
18:30 How it works at SickKids
19:50 Sign up for MyChart
21:44 Transition and Social Media
22:25 Teens Taking Charge
23:34 iPeer2Peer Program (Skype based mentorship program)
25: 14 Readiness for Adult CarE in Rheumatology (RACER Program)
26:14 Healthcare Teams Responsibilities for Transition
26:39 Teens Responsibilities
29:10 Introduction to JIA Transitions Clinic Team -Toronto, ON (Dr. Evelyn Rozenblyum, Pediatric Rheumatologist, Dr. Natasha Gakhal, Danielle McCormack, Physiotherapist)
31:15 Objectives of the JIA Transition Clinic
35:08 Team Members from JIA Transitions Clinic
36:51 Philosophy of JIA Transitions Clinic
37:54 Differences between pediatric and adult care
39:06 Virtual Care
39:33 Who is the clinic for and who is on the clinic team?
40:05 ACPac Physiotherapist (Danielle McCormack)
41:34 Dr. Natasha Gakhal
41:53 Administrative Assistant, Social Worker
43:22 Accessing Community Resources
44:10 Navigating the Adult System
45:27 Patient Goals
46:43 Clinic Contact Number
47:45 Summary + Closing
50:00 Question + Answer Period
50:07 Do I have to move services? I am happy with my care now.
51:36 What were your biggest concerns as a parent? How did you deal with the transition for Morgan?
55:40 Are there rules around parents attending the transition clinic?
58:14 How can I be sure that my child will share the information they need to share and get the information they need to get?
1:00:24 Who should bring transition up process at the beginning? The parent or the doctor?
1:03:00 What kind of support can you offer those who are entering university and what support they can be accessing?
1:04:53 Can you access the JIA Transitions Clinic (Toronto, ON) if you are coming from a different province?
1:07:10 Have you had any experience or tips for those who are doing a semester abroad?
1:09:48 How can I build this new relationship with my new transition clinic team? What was it like to build this new relationship?
1:12:08 What if the relationship with your new clinic team is not going as planned?
1:14:50 My daughter is 16 years old and her rheumatologist is retiring. Should my daughter begin transition early or should she become a patient of the new pediatric rheumatologist?
1:16:40 Have you noticed any differences between females and males in the transitions process?
1:21:20 What changes in healthcare coverages happen with the transition to adult care?
1:24:06 I am 25 now, can I stay with the JIA Transitions Clinic?
1:26:37 Closing Remarks from Jennifer Wilson
Session Speakers:
Dr. Lynn R. Spiegel MD, FRCPC
Lynn Spiegel is a pediatric rheumatologist at the Hospital for Sick Children in Toronto, an Associate Professor at the University of Toronto, and a fellow of the Royal College of Physicians and Surgeons of Canada. Dr. Spiegel has been involved in local, national and international research to develop programs and tools to support youth in their transition from pediatric to adult health care system. She has just developed an instrument to measure Transition Readiness in teens and young adults with JIA.
Dr. Natasha Gakhal, Dr. Evelyn Rozenblyum, Danielle McCormack – Clinic Team
Pediatric Rheumatologist Dr. Evelyn Rozenblyum, Adult Rheumatologist Dr. Natasha Gakhal and physiotherapist Danielle McCormack, co-lead a transition clinic at Women’s College Hospital in Toronto for young people living with juvenile idiopathic arthritis (JIA). At their clinic, they jointly see clients between the ages of 17 and 25 who are in the in-between stages of pediatric and adult rheumatology care.
Morgan Harris, Patient Speaker
Morgan Harris was diagnosed with JIA when she was eight. Her transition from pediatric to adult care made her a bit scared as she turned 18 and moved from a lifetime of caring, nurturing childhood doctors into the unknown. She had two doctors and multiple nurses who she knew cared about her and her health and she was afraid that she may not find a doctor in adult care that showed that same amount of concern for her health and well-being. In this session, you’ll hear more about her experience and learn tips for making the move.
