One of the hardest and most nerve-wracking decisions for children and teens with juvenile arthritis (also called juvenile idiopathic arthritis) and their parents is deciding when to stop medicines. The doctors from Pediatric Rheumatology at the BC Children’s Hospital in Vancouver, BC, Canada are working with other researchers based at Rutgers University (NJ) and from [...]
I was diagnosed with Juvenile Dermatomyositis (JDM) in December of 2014. So, to help you understand; Derma, is skin and myo is muscle and sitis is inflammation. I have to take injections of Methotrexate once a week and when I was first being treated I had to take prednisone for 4 months. It is not [...]
SPECIAL REQUEST: We're asking all of our 5km runners to meet at the Cassie & Friends booth in Charity Village (see below for location) between 9:00-9:15am so that we can all head to the starting line together for a 9:30am start time. Let's show everyone that JA matters by standing together in our C&F team shirts. [...]
Kadi Nicolson is a Physiotherapist in Surrey, BC, who also lives with Juvenile Arthritis. In June, she gave a talk called, How to Navigate Sport, Recreation and JIA, based on her own experiences balancing a passion for sport with chronic pain. Read Kadi’s story below and watch her full talk for more tips. Kadi’s Story: I [...]
On Sunday, May 28, 2017, we hosted our first-ever Cassie & Friends' family meet-up and group hike. Our leaders, Adrienne Dalla-Longa and Allison Brennan, both young adults who live with JIA, led an eager group of kids, parents, grandparents and siblings up to a spectacular viewing spot - Quarry Rock in Deep Cove! This event offered [...]
15 FUNdraising activities that kids can use to support the Cassie + Friends community! 1. Yard Sale You probably have a lot of items around your house that you’re no longer using. Why not sell them in a yard sale to raise money for kids? You can ask your friends and family to donate [...]
Teens Taking Charge: Andrea’s JIA After being diagnosed with Juvenile Arthritis at the age of two, Andrea’s childhood and teen years were much different than those of her peers. Her experiences with doctors’ visits and medications from such a young age forced her to mature faster and understand things her friends could not. In [...]
As you probably know, I was inspired to take part in this run by my daughter Cassie, who was diagnosed with Juvenile Arthritis before she turned two. When she was first diagnosed, my wife, Debbie, and I felt truly alone and would have given almost anything to find other parents who understood what we were [...]
Too rainy for a lemonade stand? Here are some fun and creative ways kids on Team Cassie & Friends can raise money and have fun. Try one today and help us make a difference for kids and families affected by Juvenile Arthritis and other rheumatic diseases. Don't forget: You can help us provide the support and research [...]
ACT NOW: SIGN OUR ONLINE PETITION AT CHANGE.ORG JIA affects approximately 24,000 infants to teens in BC and Canada, or 3 in every 1,000, making it one of the most common causes of chronic disability in children. Ten to 20 percent of children with JIA have Systemic Juvenile Idiopathic Arthritis (SJIA), a severe and [...]
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