‘It was so nice when my daughter came to me and said, “Mom, I finally have someone who knows what I am feeling and talking about!”

 

Honestly, this is a very big blessing and I would say it is as important as medication. Mental health is so important, and my daughter feels so much better after a session.’

– C+F Parent Testimonial

Upcoming Events

Meet the C+F Youth Mentors!

All of our mentors are trained using the iPeer2Peer training program developed at SickKids Hospital. As a part of their training program, they attend a 3-day training course and complete the mental health literacy ‘Be There Certification’ through Jack.org. Upon completing the training program, they are set up to have meaningful conversations and identify when additional help might be needed.

At the age of two, I was diagnosed with polyarticular juvenile idiopathic arthritis. As a young girl with arthritis, there were many times that I wished for mentorship and support. Now aged twenty, I would be delighted to provide that mentorship and support for youth who are just like me.

For the first half of my journey with juvenile arthritis, I received treatment at the pediatric outpatient clinic at one of the hospitals in my hometown, the Regina General Hospital. Later, my family and I began to travel three hours north to receive treatment at the Royal University Hospital in Saskatoon, and Jim Pattison’s General Hospital. At the age of nineteen, I made the transition from pediatric to adult care. Still, I make the drive to Saskatoon to receive adult rheumatology care.

My 18-year journey with juvenile arthritis includes a wide variety of experiences. Some shared health-specific experiences that I am particularly open to chatting about include TMJ arthritis and jaw surgery, ulcerative colitis, and making the transition to adult care.

Aside from our diagnoses, I am sure we will have so much more in common. Let me tell you a bit more about me. I am an undergraduate student at the University of Regina, majoring in health studies. I love to swim, cycle, travel, and jam out to Taylor Swift.

I look forward to connecting with you!

My name is Maryse, I am 20 years old. I am a university student at the University of Calgary. In my free time, I enjoy making art and spending time with my shih-tzu dog, Ernie.

I was diagnosed with lupus at age 10. I received my diagnosis and pediatric care at the Alberta Children’s Hospital in Calgary. I have experience with lupus with secondary CNS involvement. I have knowledge and experience in dealing with school, chronic illness, transition to adult care, and self-care through difficult times.

I look forward to connecting with you and supporting you!

I am 21 years old and was diagnosed with juvenile idiopathic arthritis when I was 3.

Let me tell you a bit about myself. I was born and raised in London, Ontario, and I enjoy reading, working out, and watching TV and anime. Some of my favorites are Stranger Things, Hitchhiker’s Guide to the Galaxy, and One Piece! I’ve played hockey, soccer, and competitive volleyball, and now I keep my joints healthy by biking and practicing karate. I just finished my third year studying health sciences at McMaster University, and I’m spending the summer in Toronto working with a rheumatologist at the Toronto Western Hospital.

My journey with arthritis began when I was learning to skate. After getting off the ice, my dad noticed my left knee had swelled to the size of a grapefruit. Soon after, my family took me to Sick Kids in Toronto, where I was diagnosed by a rheumatologist. Over the years, arthritis has affected my jaw, neck, knees, and ankles. I’ve had two surgeries related to arthritis. The first was at 16 to remove a piece of bone lodged between my ankle and Achilles tendon, and the second at 19 to clear out damaged cartilage from my ankle. Both surgeries were successful and have helped me maintain an active lifestyle.

Although arthritis has caused countless challenges, it has also taught me a lot about myself and others. One key lesson is about true strength. Strength isn’t just about lifting heavy objects or climbing mountains; it’s about fighting a battle that might have no end. Waking up every day and moving through life despite the pain takes immense strength. What’s important is to never give up—you’ll find that you are much stronger because of it.

I’m 25, born in PEI, and I’ve lived in New Brunswick, Ontario, BC, and now Nova Scotia. I’m a computer nerd, but outside of work, I spend most of my time playing piano or swing dancing by the waterfront. I love to bake and I’m addicted to chocolate.

Diagnosed with juvenile idiopathic arthritis and uveitis at age 3, I’ve been on methotrexate for 20 years. Some years I could pretend to be an ordinary person, but in others, I felt sick most of the time and isolated. Nobody understood what it was like to have a rheumatic disease. I learned that sometimes it was easier to mask what I felt and let others think I was fine.

I hope you’ll hop on a call and say hello!

Hello there! My name is Reine Hodroj, and I’m thrilled to introduce myself to you. I’m 24 years old and originally from a small, vibrant town, but two years ago, I made a significant move to Canada. I started my professional journey as a graphic designer and have since transitioned into the dynamic field of marketing. However, the most defining part of my story revolves around my journey with Behçet’s Disease.

Living with this rare rheumatic disease has inspired me to give back to the community. I started my blog, “Being Rare,” to share my story and amplify the voices of others living with similar conditions. Through my blog, I discuss life with rheumatic disease, provide insights, and cover other important topics within this sphere. My goal is to create a supportive and informative space for those affected by rare diseases.

In addition to my blog, I am proud to volunteer with Cassie and Friends, a remarkable organization dedicated to supporting children and families affected by juvenile arthritis and other rheumatic diseases.

To my future mentees, I want you to know that you are not alone. Living with a rare disease can be isolating, but together, we can create a supportive community where you feel understood and empowered. I am here to walk with you through your challenges, celebrate your victories, and help you realize your full potential. I look forward to the possibility of working with you and supporting you through this journey.

I’m 25 and spend a lot of my free time reading, writing, hiking, and watching movies!

I was diagnosed with Juvenile Idiopathic Arthritis at 14, just as I was starting high school. I had to learn to manage the disease through school, jobs, and sports. I danced competitively most of my life and continued competing after my diagnosis. I had hip surgery at 15 and have taken various medications over the years. Currently, I’m on methotrexate and will soon start a biologic.

I’m happy to listen to your stories and experiences as you navigate your own diagnosis!

I was diagnosed with Juvenile Idiopathic Arthritis (JIA) in my mid-teens. Coming from Vancouver, I received care at BC Children’s Hospital. I was an avid rock climber and competitive rower, but I started finding it harder to hold onto rock climbing holds and rowing oars as my hands and wrists became very stiff, swollen, and painful – to the point where I couldn’t even hold a pen. My arthritis progressed and made daily tasks like dressing and eating challenging. I’ve been on biologic medication for several years now. I’m here to talk about transition, injections, and all things JIA.

I’m currently studying English Literature at the University of Toronto.

I love all things literature, acting, and rowing. As a typical English Literature major, Jane Austen is my favorite author. I’m also a big fan of Margaret Atwood and recently worked as a student researcher on a project about her led by a U of T professor. If you love Margaret Atwood, I’m definitely the mentor for you (just kidding – kind of).

I’m also passionate about acting and theatre. Last year, I served as the president of my college’s dramatic society, where I produced three shows, ran numerous workshops, and raised several thousand dollars for Cassie + Friends through our concession stand and ticket sales! Acting in school shows is a favorite pastime of mine, and my most humorous performance was playing Zeke in High School Musical. Let’s just say I’m not a star basketball player. I’d love to hear about your favorite theatre experiences!

I also lead the University of Toronto Rheumatic Disease Club. If you’re a U of T student, please get in touch! We can send you a care package, help you navigate accessibility services, connect you with other youth who have rheumatic diseases, and just be there for you.

Can’t wait to connect with you!

I am a student at the University of Guelph studying Human Nutrition.

I was diagnosed with Juvenile Idiopathic Arthritis (JIA) when I was eight and received care at Sick Kids Hospital in Toronto before transitioning to the Women’s College Hospital JIA Transition Clinic. I’ve experienced both pediatric care and the transition to adult care firsthand. I even participated in a research project focused on the transition experience for JIA patients in Canada.

I’m comfortable talking about healthy living with arthritis, managing social situations, moving away from home, taking responsibility for health care, and living a life independent from my disease.

In my free time, I love traveling, cooking, being active outdoors, and spending time with friends and family.

Can’t wait to connect!

Hi all! My name is Lisa and I am 19 years old. I am currently a student at Queen’s University in the health sciences program, but I grew up in the Greater Toronto Area with my parents, my sister, and my German Shepherd!
I was diagnosed with JIA when I was 14, and I received treatment at my local pediatric rheumatology clinic. I am happy to talk about various topics, ranging from disease management, to transition to adult care, and even student life! I really enjoy watching new TV shows and movies (let me know which one is your favourite!), collecting small trinkets, and travelling. I am also a huge fan of nature and love taking hikes with my family when we take camping trips :). I look forward to connecting with you and supporting you in your journey!

Hi my name is Ishan and I’m very excited to share a bit about myself! I was born in Vancouver, British Columbia, and I’m currently in my first year studying health sciences at the University of Ottawa. I love staying active through activities like soccer, hiking, and working out at the gym. I’m also a big fan of many sports teams, especially the Vancouver Canucks and Toronto Blue Jays games! When I’m not being active, I like to play video games or read non-fiction books.

My journey with juvenile idiopathic arthritis (JIA) began when I was around 8 years old. I started experiencing pain and stiffness in my hands, which led to multiple doctor visits before I was diagnosed by a pediatric rheumatologist. Along the way, I was also diagnosed with Raynaud’s and microgeodic syndrome, which have added extra challenges when it comes to managing circulation and joint pain. Despite these obstacles, I’ve worked hard to stay active and not let these conditions hold me back. I’m happy to say over the course of the past few years, my symptoms have significantly decreased after many switches and medications.

Living with arthritis, Raynaud’s, and microgeodic syndrome has taught me valuable lessons about resilience and perseverance. I’ve realized that true strength isn’t just about being physically tough—it’s about facing challenges head-on and not giving up, even when things get hard. I’m excited to be part of the Cassie + Friends Youth Mentoring Program and to connect with others who may be navigating similar journeys.

Hi There,

I’m Emma Linsley, a 23-year-old from Saskatoon, Saskatchewan. Currently, I am in my first year of medical school at the University of Saskatchewan, and am so excited to be on the road to being a doctor!

Diagnosed with Juvenile Arthritis at 16 and Secondary Sjogren’s just this year, I have over 7 years of experience learning to not just survive – but THRIVE, with my rheumatic diseases.

Here are a few fun facts about me: I love traveling, playing sports – especially basketball, listening to music, and dancing with my friends. 

My goal as a mentor is to ensure you feel heard and seen. Whether it’s chatting about your favourite baking recipes or planning exciting summer adventures, I’m here for you. We can also explore topics like how to navigate university life, move out for the first time, or manage traveling with a rheumatic disease—whatever you need, I’ve got your back.

Life with illnesses like ours can be unpredictable and sometimes isolating. But remember, you’re not alone.

Whether you need a pep talk, a good laugh, or just an understanding ear, I’m here to support you every step of the way of your journey.

I can’t wait to meet you!

I was diagnosed with polyarticular Juvenile Idiopathic Arthritis (JIA) at 11 years old and received care at BC Children’s Hospital in Vancouver as well as the Rheumatology Clinic in Victoria.

Currently, I am a student at the University of British Columbia studying Psychology and Business. I am really involved in the community and am part of many on-campus clubs, including TEDxUBC. In my free time, I am a huge reader (book recommendations are always appreciated), and I love exploring new hiking trails, especially with my two dogs! I also love to travel and have visited over 20 countries!

For me, arthritis has shaped a large portion of my life. Growing up, I was a dedicated athlete, particularly in soccer and competitive showjumping. However, when I was diagnosed, that all changed. I was unable to participate in sports the way I used to, and I felt a loss of identity. The joints most affected by my JIA are my knees, hips, wrists/hands, and the TMJ joint. I have been on many medications and have had a couple of surgeries related to my JIA in order to maintain a healthy and active life!

Although arthritis has caused many challenges, physically, emotionally, and socially, it has taught me so much. I believe I am more resilient and patient because of it. Every day may bring challenges, but I remember to listen to my body and keep a positive mindset!

I look forward to connecting!

Hi! I’m 21 years old, but I first started having symptoms for juvenile idiopathic arthritis ON my 12th birthday (true story!) and was finally diagnosed 4 months later. I have since had flare ups to the point of needing cortisone injections in both knees, my ankle and my finger. I know firsthand how frustrating it can be to find the right medication for you (I’m about to try out my 4th one!), and to overcome the hurdle of self-injections. My arthritis journey has been a defining experience for me as I have learned to speak up for myself in the transition from pediatric to adult care, and listen to my body every day. I’d love to chat with you about any of my experiences, and hear any of yours that you want to share!

I’m just finishing my last year of Life Sciences at Queen’s University, but I’m from Toronto. Starting at age 10 I spent my summers at overnight camp, so I had to learn how to navigate my arthritis while being away from home and my doctors. 

I’m happy to talk about other things we may have in common too! Growing up I used to play soccer, dance, and play piano. Now, my interests are working out, colouring, traveling, and binge-watching tv shows and Disney movies.

I hope you’ll reach out so we can get to know each other more!

C+F Youth Mentorship Program FAQS

The C+F Youth Mentorship Program provides a safe and secure space where trained mentors can share their lived experiences, tips, and advice in navigating growing up with JA or another rheumatic disease and where mentees can ask questions in a judgment-free setting with a peer that ‘just gets it’.

There’s a lot going on when you’re a kid – school, making friends, extracurriculars. As you get older, this list gets even longer: graduating high school and beginning post-secondary, jobs, relationships, travel, and more. And, when you’re living with juvenile arthritis or another rheumatic disease there are even more considerations:

  • How do I talk to my teachers/coaches about my health needs?
  • How do I tell my friends?
  • How do I balance school, work, and other commitments with all of my doctor’s appointments and the need to take care of myself?
  • How do I travel with my medication? Can I access my prescriptions in other countries?
  • When my friends start dating and going to parties, are there things that I need to consider related to my health?

All of these questions (and so many more) can be overwhelming – the C+F Youth Mentorship Program can help!

All of our mentors are trained using the iPeer2Peer training program developed at SickKids Hospital. As a part of their training program, they attend a 3-day training course and complete the mental health literacy ‘Be There Certification’ through Jack.org. Upon completing the training program, they are set up to have meaningful conversations and identify when additional help might be needed.

Connect with a Mentor whichever way is right FOR YOU!

You might not be ready to jump on a video call and dive right in with a mentor that you’ve never met before… And that’s okay! There are plenty of ways that you can connect with a mentor, including:

  • Receive a personalized letter or video message from one of our mentors
  • Schedule a Jane.app or phone call with a mentor
  • Attend one of our youth connection events where you can ask questions and receive advice in a group setting

We’re here to support you in whatever way you’re most comfortable with! Reach out to jessica@cassieandfriends.ca to chat more about which option is best for you!

“Our daughter felt like weight had been lifted off her shoulders after hanging up from the group call. She couldn’t stop smiling. Her dad and I were holding back tears knowing our daughter finally felt like she had been able to connect with others who live the same struggles.

We look forward to her being to connect again with you all in the future!”

– C+F Parent Testimonial

Ways to Get Involved the the Youth Mentorship Program

Become a Mentee

Receive support as a C+F Youth Mentee:

This means you are looking to access peer support from a trained C+F Youth Mentor. All mentors are directly affected by a childhood rheumatic disease.

Find a mentor today!

Become a Mentor

Give support by becoming a trained C+F Youth Mentor:

Each of our mentors have been trained and equipped with the skills and resources needed to coach their mentees through various ups and downs of their rheumatic disease journeys.

Become a mentor today!

Thoughts from Our Mentors

Request a letter from our mentors!

“I find people are more curious than anything and enjoy learning about how a young person has an “old person’s disease” . When people said this to me when I was younger, it really got under my skin. It doesn’t bother me anymore, as I turned it into an opportunity to educate!”

“It wasn’t until I was on that zoom call with six other people my age who had my same diagnosis as me that I truly felt seen in my experiences in growing up with JIA. The connection to the others was instant: it was so comforting to meet others who had also been through the same things I had.”