Many pediatric rheumatologists will consider more active treatment in children who have CRMO involving the spine. This may include the options listed above. Whether to treat spine lesions that are not causing symptoms, but identified on MRI, is controversial at the present time.
In Dr. Ferguson’s talk (see the video!), she describes the treatment options often used for children with CRMO. When Naproxen or other non-steroidal anti-inflammatory medications do not work, treatments may include bisphosphonates (bone medication), corticosteroids (to help with short term flares), methotrexate, or biologic medications. Discussing these options with your pediatric rheumatologist will help [...]
For many patients with CRMO, there is long term healing of the CRMO lesions. The bone may be left with an area of what is called ‘sclerosis’, which is like a scar, but this doesn’t mean the bone is weak; it is like healing after a fracture. It is less frequent that CRMO lesions [...]
This is a somewhat controversial topic. Currently, there are no established guidelines for treatment of CRMO in various stages. We do know that many CRMO lesions do progress to a healing phase. Areas that may be more concerning and require consideration of longer treatment would be those affecting the spine, areas that have had [...]
There is not a lot of literature on long-term outcomes of patients with CRMO to provide rates of remission, and persistence of remission after stopping medication. Dr. Ferguson discussed this in her talk- we know how to start medications but we have little evidence base for understanding when to stop. Many children with [...]
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