How can we be part of a registry? Are there any studies we can be a part of or ways to help the knowledge around CRMO grow?
There are increasing efforts to collect information about children with CRMO into long-term research registries, to help learn more about this disease, treatments and outcomes. Some pediatric rheumatology centers have their own research registries, and some centers are collaborating together to collect this information. Canadian pediatric rheumatologists have formed a CRMO research group [...]
