July 2022

When and why should we combine Naproxen with MTX?

By |July 14th, 2022||

Many children with JIA will take Naproxen and methotrexate together. Naproxen is a medication with pain relieving properties, and has some anti-inflammatory effect as well when taken regularly. Methotrexate is not a pain relieving medication, but works to control inflammation in a very different way from Naproxen. Many children have good disease control with [...]

My daughter is 6 years in and hasn’t achieved remission. She doesn’t remember a life before JIA and never actually had one before that as she was diagnosed before she was 2. It is very hard for her to be positive and she has developed anxiety and sometimes seems depressed (age 8.) Is there anything you could suggest to help her find a positive reframe when she doesn’t know anything else other than pain, sickness, missed birthdays and isolation because of the pandemic..?

By |July 14th, 2022||

We would suggest to speak with your rheumatology team or with your family doctor. Rheumatology clinics often have access to psychologists or other resources that can help to develop strategies to cope with disease and impact. Family doctors might know good community resources that might be helpful for your daughter.

How do you suggest dealing with school teachers and specific subjects (my daughter is in grade 7), especially when missing so much school time due to pain?

By |July 14th, 2022||

We would suggest speaking with your pediatric rheumatology care team about your concerns with your child’s participation at school. Rheumatology clinics generally have a letter to share with the school for modifications that may be required by a child with arthritis. If this is not sufficient, often the team’s social work, occupational or physiotherapy [...]

Does pain tolerance change with age?

By |July 14th, 2022||

Pain is truly both a physical and an emotional experience perceived and processed by the brain, and it is a real health problem. Each child has a different pain perception, and the meaning of pain is also different from child to child. Age differences in pain perception are not consistent. Acute and chronic pain [...]

May 2022

CRMO Webinar Time Stamps

By |May 17th, 2022||

0:00 - Introduction by Dr. Lori Tucker 3:00 - Dr. Lori Tucker introduces Sheila Grant (Parent Speaker) and Dr. Polly Ferguson 5:55 - CRMO Presentation by Dr. Polly Ferguson: What we know about the cause of CRMO 7:00 - Basics of Immunology 8:00 - Immune Activation and Inflammation 9:50 - Immune System Cells 10:30 [...]

How can we be part of a registry? Are there any studies we can be a part of or ways to help the knowledge around CRMO grow?

By |May 2nd, 2022|, |

There are increasing efforts to collect information about children with CRMO into long-term research registries, to help learn more about this disease, treatments and outcomes.  Some pediatric rheumatology centers have their own research registries, and some centers are collaborating together to collect this information.   Canadian pediatric rheumatologists have formed a CRMO research group [...]

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