0:00 – Introduction by Dr. Lori Tucker
3:00 – Dr. Lori Tucker introduces Sheila Grant (Parent Speaker) and Dr. Polly Ferguson
5:55 – CRMO Presentation by Dr. Polly Ferguson: What we know about the cause of CRMO
7:00 – Basics of Immunology
8:00 – Immune Activation and Inflammation
9:50 – Immune System Cells
10:30 – What causes immune activation in CRMO?
15:35 – Genetic Factors in CRMO
33:30 – CMO Mouse Experiment
39:00 – Why don’t we use IL-1 Inhibitors to treat CRMO?
41:15 – Treatments for CRMO (Blocking Pro-inflammatory Proteins)
44:55 – Misconceptions around CRMO (“What can I feed my child to make CRMO go away?”)
47:00 – Diet Advice for CRMO
48:10 – Closing and Acknowledgements
48:56 – Dr. Lori Tucker thanks Dr. Polly Ferguson and introduces Sheila’s Presentation
49:30 – Sheila’s Presentation about her family’s journey with CRMO
57:00 – Dr. Lori Tucker thanks Sheila
57:25 – Q&A session starts
58:05 – Why is it so hard to diagnose CRMO?
1:00:55 – How long does treatment need to continue? Is it possible to discontinue treatment? Are there risks of relapse if treatment stops?
1:04:15 – What percentage of kids will continue having problems with CRMO into adulthood or does this disease resolve?
1:09:30 – Can you have CRMO only in one site?
1:10:35 – Can you have CRMO and ERA in the same person?
1:12:05 – Do you have any advice for how parents can support their kids in learning how to advocate for themselves?
1:16:00 – Is there currently a way to identify if other family members are at risk?
1:16:53 – Conclusion of the Q&A session
1:17:53 – Closing Remarks
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