There are increasing efforts to collect information about children with CRMO into long-term research registries, to help learn more about this disease, treatments and outcomes.  Some pediatric rheumatology centers have their own research registries, and some centers are collaborating together to collect this information.   Canadian pediatric rheumatologists have formed a CRMO research group and they are hoping to obtain funding to get some research projects started soon.  

Ask your pediatric rheumatologist if you or your child can enter one of these important research studies!