Advocacy

Events

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  • Beyond Transition: Advocating for Your Rheumatic Disease Needs in the Workplace

    Zoom

    In collaboration with the Institute of Work and Health, JIA Transition Clinic at Women's College Hospital, Toronto and young adults with lived experience, we are excited to host a discussion that extends Beyond Transition and the doctor's office, focusing on advocating for health needs in the workplace. You'll get to hear from an inspiring [...]

  • Rare Talks: When Answers Take Time: Real Lives, Rare Disease, and Support That Matters

    Zoom

    When a child is living with a rare rheumatic disease, answers often take time. Families may face long diagnostic journeys, unpredictable symptoms, and too few resources designed for their realities. Too often, their experiences remain unseen. RareTalks is a space created to change that. Held during Rare Disease Month, this annual virtual event brings together families, [...]