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DTSTART;TZID=America/Vancouver:20210529T163000
DTEND;TZID=America/Vancouver:20210529T180000
DTSTAMP:20260420T075718
CREATED:20210309T004651Z
LAST-MODIFIED:20210529T164921Z
UID:6014-1622305800-1622311200@cassieandfriends.ca
SUMMARY:Putting on Your Life Jacket: Self-care for Caregivers
DESCRIPTION:Register Today!\n\nOur next – and final – session of the 2020-21 Virtual Education Series is a special one for all types of caregivers! Cassie + Friends is excited to bring you the opportunity to learn from “Love and Logic” parenting educator\, author and parent of a child with a chronic condition herself\, Lisa Greene.\n\nAt this session\, you’ll learn how Lisa equipped herself (and her husband!) with the critical tools needed to rest\, recharge\, and remember that they\, too\, need care. Lisa will move between teaching and small\, intimate breakout groups where you can debrief and share with other parents in our community. You will walk away with a lighter step and immediately applicable\, practical\, and highly effective parenting tools specific to caring for children/teens with chronic disease. \nPrepare for the event in advance by reading pages 11-17 of Tools & Tips for Coping with a Diagnosis. \n\n \nWhat to expect from the session: \nThis workshop is designed to help you take care of yourself and manage the emotional rollercoaster commonly associated with parenting a child with a chronic medical condition. Specifically\, this session will help you:\n\n\n\n\n\ndevelop an increased understanding of your emotions\nunderstand the cycle of grief and chronic sorrow\nrecognize clinical symptoms of depression and anxiety that deserve professional help\nidentify ways to cope with difficult feelings and stress\nexplore wellness/self-care strategies that work best for you\nconnect with other caregivers in small breakout room discussions\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nTake a new step towards caregiver self-care and register for this session today.\n\n\nAbout the Speaker: Lisa C. Greene\, M.A.\, CFLE \nWhen Lisa’s first child Jacob was born unexpectedly with cystic fibrosis\, she left her fifteen-year career in mortgage banking to focus on taking care of Jacob.  Needing information about both special needs and general parenting challenges\, she started digging into the many different parenting resources and experienced “information overload” along with conflicting\, and un-researched\, information about how to be an effective parent.   \nIt was then that Lisa discovered Love and Logic and life changed for the whole family. Now\, as an independent Love and Logic facilitator since 2002\, Lisa has taught the program professionally to thousands of parents around the country. She enjoys working with families so much that she decided to get additional training as a parent coach. In 2007\, she completed the parent coach certification program at ACPI. Lisa has also completed Love and Logic’s facilitator training program and is a Certified Positive Discipline Educator. For formal education\, Lisa has a Bachelor’s degree in Business from Central Washington University and completed her Master’s degree in Family Life Education at Concordia University in December 2013.  She also completed the 1\,600-hour work requirement for certification as a family life educator through National Council of Family Relations.  \nIn addition to helping parents raise healthy\, happy families\, she is the author of four books\, an international public speaker\, certified family life educator\, and parent coach. As a speaker and writer\, Lisa touches the lives of hundreds of families each year with her teachings and message of hope. \nRead more about Lisa’s journey at cassieandfriends.ca/stories/lisagreen.
URL:https://cassieandfriends.ca/event/putting-on-your-life-jacket-self-care-for-caregivers/
LOCATION:Zoom
CATEGORIES:Virtual Education
ATTACH;FMTTYPE=image/jpeg:https://cassieandfriends.ca/wp-content/uploads/2020/08/Mom-and-Daughter-Family-Day.jpg
ORGANIZER;CN="Cassie and Friends":MAILTO:brittany@cassieandfriends.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20210424T143000
DTEND;TZID=America/Vancouver:20210424T160000
DTSTAMP:20260420T075718
CREATED:20210224T205144Z
LAST-MODIFIED:20210412T220022Z
UID:5920-1619274600-1619280000@cassieandfriends.ca
SUMMARY:Rare Rheumatic Disease Talks
DESCRIPTION:Register Now for this FREE event!\nIs your family navigating JDM\, Fever Syndromes\, Lupus\, or Vasculitis? At Cassie + Friends\, we want you to know that you’re not alone! \nJoin us for an engaging discussion on these rare diseases facilitated by pediatric rheumatologists from across Canada. You’ll learn information specific to your child’s disease and meet other families with the same diagnosis in our break-out room sessions. \nBring your questions for our live Q+A! \nOverview of Autoinflammatory vs. Autoimmune Diseases\nDr. Lori Tucker\, Pediatric Rheumatologist\, BCCH \nDr. Lori Tucker is a Clinical Professor in Pediatrics\, Pediatric Rheumatology\, BC Children’s Hospital\, University of British Columbia.  Her research focuses on physical activity in children and youth with JIA\, development of shared decision-making in pediatric rheumatology care\, and autoinflammatory diseases in children.  She is one of the founding members of the Canadian Alliance of Pediatric Rheumatology Investigators.  In addition\, she is a passionate advocate for kids with rheumatic diseases and their families\, provincially and nationally and as a member of the Cassie & Friends Board. \nPresenting on Juvenile Dermatomyositis (JDM)\nDr. Adam Huber\, Pediatric Rheumatologist\, IWK Health Centre \nAdam Huber has been a pediatric rheumatologist at the IWK Health Centre in Halifax since 2000\, after having finished his training at the Hospital for Sick Children in Toronto. \nHe is particularly interested in the assessment and outcomes of children with juvenile dermatomyositis and other rheumatic illnesses as well as in finding better ways to treat these illnesses. He is the current chair of the Juvenile Dermatomyositis Committee for the Childhood Arthritis and Rheumatology Research Alliance and sits on the Medical Advisory Board for Cure JM\, a patient advocacy and support group. He also has an interest in research ethics\, and has been co-chair of the IWK Health Centre Research Ethics Board for the last 15 years. \nPresenting on Lupus\nDr. Deborah Levy\, Pediatric Rheumatologist\, Sick Kids Hospital \nDr. Deborah Levy is the Clinical Director\, Division of Rheumatology at the Hospital for Sick Children (“SickKids”) in Toronto and an Associate Professor of Pediatrics at the University of Toronto.  Dr. Levy’s interests are broad; however\, she is co-director of the Lupus clinic at SickKids and her research primarily focuses on the long-term medical and psychosocial outcomes of childhood-onset Lupus. She has participated as a collaborator on multiple research projects through CAPRI.  She is also interested in alternate models of care for children with arthritis and is working with advanced practitioners to develop a new network of pediatric rheumatology providers for children in underserved communities within Ontario.  Advocacy work as the past Chair of the Pediatric Committee of the Canadian Rheumatology Association and as the Vice President (Pediatric) of the Ontario Rheumatology Association has helped to improve access to drugs for pediatric rheumatology patients.  Dr. Levy has lived\, trained and worked in both the US and Canada. \nPresenting on Vasculitis\nDr. David Cabral\, Pediatric Rheumatologist\, BC Children’s Hospital \nDavid Cabral trained in Western Australia and Vancouver. He joined the British Columbia Children’s Hospital (BCCH) rheumatology team in 1992 when he co-founded of the Young Adult Rheumatic Disease (YARD) clinic\, among the first such transition clinics in BCCH and across Canada. He has been Rheumatology Division head since 2004. His vision has been to integrate research with clinical care and teaching and in the last 10 years he helped establish a basic science research laboratory for pediatric rheumatology at BCCH lead by Dr Kelly Brown. Vasculitis is among his research interests and in 2007 he established an ongoing international physician network patient Registry for Childhood Vasculitis. He currently co-chairs a vasculitis working group within the Childhood Arthritis and Rheumatology Research Alliance. \nPresenting on Fever Syndromes:\nDr. Marinka Twilt\, Pediatric Rheumatologist\, Alberta Children’s Hospital \nMarinka Twilt trained in the Netherlands and Toronto. After working in the UK and Denmark she joined the Alberta Children’s Hospital in 2015 where she runs the Autoinflammatory Diseases clinic.  \nDr Twilt’s interests are in precision medicine for rheumatic diseases\, autoinflammatory diseases and TMJ arthritis. Dr Twilt is active in the Childhood Arthritis Rheumatology Research Alliance autoinflammatory group and leads the development of the CARRA AID registry. Dr Twilt is also interested in training the new young generation and is active in the Canadian Child Health Clinician Scientist program.
URL:https://cassieandfriends.ca/event/rare-talks/
LOCATION:Zoom
CATEGORIES:Virtual Education
ATTACH;FMTTYPE=image/png:https://cassieandfriends.ca/wp-content/uploads/2020/04/Toronto-Pic-1.png
ORGANIZER;CN="Cassie and Friends":MAILTO:brittany@cassieandfriends.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20210327T163000
DTEND;TZID=America/Vancouver:20210327T163000
DTSTAMP:20260420T075718
CREATED:20201214T191737Z
LAST-MODIFIED:20210325T170520Z
UID:5478-1616862600-1616862600@cassieandfriends.ca
SUMMARY:Webinar: Methotrexate
DESCRIPTION:Register Now!\nIf your family has questions about methotrexate\, you’re not alone! In fact\, most families in the pediatric rheumatic disease community have questions about this form of treatment; what are the long-term effects of Methotrexate? Which is more effective\, oral or injections? My child feels sick with methotrexate\, what can I do about it?\n\nJoin pediatric rheumatologist\, Dr. Jaime Guzman as he discusses answers to these questions and more. This session will review the research behind methotrexate use in children (when and why it’s prescribed) and offer approaches to help minimize anticipated difficulties. Bring your questions for our live Q+A!\n\nWe are pleased to offer this session live in both English and French. Register here!\nSession Speakers\nDr. Jaime Guzman\, Pediatric Rheumatologist\nDr. Jaime Guzman is a physician and clinical epidemiologist educated in Mexico and Canada with specialist training in pediatric rheumatology and in physical medicine and rehabilitation. Currently\, Dr. Guzman is Clinical Associate Professor of Pediatrics at the University of British Columbia\, Clinical Investigator at the BC Children’s Hospital Research Institute and attending rheumatologist at BC Children’s Hospital. Dr. Guzman’s research has been published in over 90 peer-reviewed scientific articles that have been cited more than 11\,000 times. Since 2011 his research focus is the course and prognosis of children with juvenile arthritis\, including pivotal papers on the outcomes of juvenile idiopathic arthritis and how to predict them. In 2017\, The Canadian Institutes of Health Research and Dutch funding agencies granted 8 million dollars in funding to a team including Doctor Guzman\, to advance personalized medicine in childhood arthritis. \nAbby Mazzone\, 13 \nAbby was diagnosed with Juvenile Idiopathic Arthritis (JIA) when she was only 15 months old.  Since being diagnosed\, she’s taken many different kinds of medication and treatments including Methotrexate to treat her JIA and uveitis. Arthritis has never stopped her from doing the things she loves\, and she says\, “Arthritis may slow me down for a minute while we adjust my treatment plan\, but it’s never stopped me. When I was younger I took hip hop classes and gymnastics and now I do regular teenager things with my friends!” \nRead about Abby + Amy’s journey with JIA and methotrexate here. \nAmy Mazzone \nAmy is a mother of two\, who has been parenting her daughter\, Abby\, who lives with JIA for over 12 years. Through her daughter’s journey with JIA and Uveitis\, Amy has experienced many of the ups and downs of her daughter’s medication and treatment\, as well as parenting a child with a chronic illness. Amy is an active participant and supporter of research studies focused on pediatric rheumatic diseases as she believes Abby’s health would not be where it is today without it. In her spare time\, Amy loves to bake\, play slow pitch and spend time with her family and dog\, Buddy!
URL:https://cassieandfriends.ca/event/methotrexate/
CATEGORIES:Virtual Education
ATTACH;FMTTYPE=image/jpeg:https://cassieandfriends.ca/wp-content/uploads/2020/12/needle-boy.jpg
ORGANIZER;CN="Cassie and Friends":MAILTO:brittany@cassieandfriends.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20201105T160000
DTEND;TZID=America/Vancouver:20201105T173000
DTSTAMP:20260420T075718
CREATED:20201016T230236Z
LAST-MODIFIED:20211102T200836Z
UID:4774-1604592000-1604597400@cassieandfriends.ca
SUMMARY:Juvenile Arthritis Transitions: Making the Move From Pediatric to Adult Care
DESCRIPTION:This expert-led session is for anyone interested in learning more about what’s involved in the transition from pediatric to adult care and how you and your medical team can work together to ensure a smooth and successful process. \nFrom this session you will:\n+ Hear directly from parents and young adults about their real-life transition experiences\n+ Gain insight from an expert at SickKids about how you and your child/teen will be prepared to graduate from pediatric care\n+ Meet the JIA Transition Clinic team from Women’s College Hospital who will share the in and outs of what happens at clinic and how they will support you \nJIA Transitions Webinar Time Stamps0:00 Welcome from Cassie + Friends Executive Director\, Jennifer Wilson \n4:35 Introduction of Patient Speaker\, Morgan Harris \n5:11 Morgan Harris JIA Patient Speaker \n13:30 Morgans tips for teens \n16:05 Introduction Speaker\, Pediatric Rheumatologist\, Dr. Lynn Spiegel (SickKids Hospital) \n16:40 Dr. Lynn Spiegel Crossing from Pediatric to Adult Health Care \n18:05 Importance of Transition Planning \n18:30 How it works at SickKids \n19:50 Sign up for MyChart \n21:44 Transition and Social Media \n22:25 Teens Taking Charge \n23:34 iPeer2Peer Program (Skype based mentorship program) \n25: 14 Readiness for Adult CarE in Rheumatology (RACER Program) \n26:14 Healthcare Teams Responsibilities for Transition \n26:39 Teens Responsibilities \n29:10 Introduction to JIA Transitions Clinic Team -Toronto\, ON (Dr. Evelyn Rozenblyum\, Pediatric Rheumatologist\, Dr. Natasha Gakhal\, Danielle McCormack\, Physiotherapist) \n31:15 Objectives of the JIA Transition Clinic \n35:08 Team Members from JIA Transitions Clinic \n36:51 Philosophy of JIA Transitions Clinic \n37:54 Differences between pediatric and adult care \n39:06 Virtual Care  \n39:33 Who is the clinic for and who is on the clinic team? \n40:05 ACPac Physiotherapist (Danielle McCormack) \n41:34 Dr. Natasha Gakhal \n41:53 Administrative Assistant\, Social Worker \n43:22 Accessing Community Resources \n44:10 Navigating the Adult System \n45:27 Patient Goals \n46:43 Clinic Contact Number \n47:45 Summary + Closing \n50:00 Question + Answer Period \n50:07 Do I have to move services? I am happy with my care now.\n \n51:36 What were your biggest concerns as a parent? How did you deal with the transition for Morgan? \n55:40 Are there rules around parents attending the transition clinic? \n58:14 How can I be sure that my child will share the information they need to share and get the information they need to get? \n1:00:24 Who should bring transition up process at the beginning? The parent or the doctor? \n1:03:00 What kind of support can you offer those who are entering university and what support they can be accessing? \n1:04:53 Can you access the JIA Transitions Clinic (Toronto\, ON)  if you are coming from a different province? \n1:07:10 Have you had any experience or tips for those who are doing a semester abroad? \n1:09:48 How can I build this new relationship with my new transition clinic team? What was it like to build this new relationship? \n1:12:08 What if the relationship with your new clinic team is not going as planned? \n1:14:50 My daughter is 16 years old and her rheumatologist is retiring. Should my daughter begin transition early or should she become a patient of the new pediatric rheumatologist? \n1:16:40 Have you noticed any differences between females and males in the transitions process? \n1:21:20 What changes in healthcare coverages happen with the transition to adult care? \n1:24:06 I am 25 now\, can I stay with the JIA Transitions Clinic? \n1:26:37 Closing Remarks from Jennifer Wilson \n\nSession Speakers:\nDr. Lynn R. Spiegel MD\, FRCPC\n \nLynn Spiegel is a pediatric rheumatologist at the Hospital for Sick Children in Toronto\, an Associate Professor at the University of Toronto\, and a fellow of the Royal College of Physicians and Surgeons of Canada. Dr. Spiegel has been involved in local\, national and international research to develop programs and tools to support youth in their transition from pediatric to adult health care system. She has just developed an instrument to measure Transition Readiness in teens and young adults with JIA. \n  \n  \n  \n \nDr. Natasha Gakhal\, Dr. Evelyn Rozenblyum\, Danielle McCormack – Clinic Team  \nPediatric Rheumatologist Dr. Evelyn Rozenblyum\, Adult Rheumatologist Dr. Natasha Gakhal and physiotherapist Danielle McCormack\, co-lead a transition clinic at Women’s College Hospital in Toronto for young people living with juvenile idiopathic arthritis (JIA). At their clinic\, they jointly see clients between the ages of 17 and 25 who are in the in-between stages of pediatric and adult rheumatology care. \n  \n  \n  \nMorgan Harris\, Patient Speaker \nMorgan Harris was diagnosed with JIA when she was eight. Her transition from pediatric to adult care made her a bit scared as she turned 18 and moved from a lifetime of caring\, nurturing childhood doctors into the unknown. She had two doctors and multiple nurses who she knew cared about her and her health and she was afraid that she may not find a doctor in adult care that showed that same amount of concern for her health and well-being. In this session\, you’ll hear more about her experience and learn tips for making the move.
URL:https://cassieandfriends.ca/event/teentransition/
LOCATION:Zoom
CATEGORIES:Virtual Education
ATTACH;FMTTYPE=image/png:https://cassieandfriends.ca/wp-content/uploads/2020/10/New-Transition-.png
ORGANIZER;CN="Cassie and Friends":MAILTO:brittany@cassieandfriends.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20201024T163000
DTEND;TZID=America/Vancouver:20201024T183000
DTSTAMP:20260420T075718
CREATED:20200917T215553Z
LAST-MODIFIED:20201103T184809Z
UID:4582-1603557000-1603564200@cassieandfriends.ca
SUMMARY:Webinar: Uveitis
DESCRIPTION:Did you miss out on our live Uveitis session? Looking for a refresher? Or a newly diagnosed family looking for more information? Watch the live recording below. What can you expect from Uveitis?\nHear about uveitis (eye inflammation) associated with JIA from Dr. Alan Rosenberg\, Pediatric Rheumatologist. You’ll learn where the inflammation occurs\, what the risks of the inflammation and treatments are\, and get a glimpse into the latest uveitis research. \nYou’ll also hear from a former patient of Dr. Rosenberg’s about their firsthand experience with uveitis. \nWebinar Recording Time Stamps \nDon’t have time to watch the full video? No problem! Below you will find all the questions our panelists were asked with the appropriate time stamp. 0:00 Opening remarks from Cassie + Friends Executive Director\, Jennifer Wilson \n4:20 Introduction of Speakers Becki Zerr and Dr. Alan Rosenberg \n6:40 Becki Zerr: JIA and Uveitis Diagnosis and experience \n17:38 Becki’s advice to parents \n18:25 Becki’s advice to patients \n19:16 Becki’s advice to doctors\, researchers and healthcare professionals \n19:37 Becki’s closing remarks \n19:54 Dr. Alan Rosenberg \n20:10 The Story of Jessica (JIA and Uveitis) \n22:59 Becki’s Story by Dr. Alan Rosenberg \n23:40 Research of Uveitis Associated with JIA \n24:33 How the eye works \n24:50 3 Main layers of the eye \n26:35 Anterior Uveitis \n27:00 Panuveitis \n27:11 Risk Factors and characteristics of Uveitis Associated with JIA \n27:47 Why does joint inflammation and eye inflammation occur together? \n28: 24 Types I and II Collagens \n31:28 Linking arthritis\, uveitis\, ANA\, young onset age \n34:15 ERA and Uveitis Research Insight \n36:09 Research Updates \n37:00 Summary from Dr. Alan Rosenberg \n41:00 How important is it to keep checking for Uveitis when a child’s arthritis has been inactive? \n42:58 Does Uveitis have flare ups\, does it behave in a similar fashion as JIA? \n46:33: Is there anything that parents can do to monitor at home? When there are symptoms\, what were some of things that helped you find relief? \n50:02  Why are there such long wait times in the ophthalmologist office? \n52:31 Our daughter cannot handle even the slightest bit of brightness. Is light sensitivity common with uveitis? \n55:22 Is vision affected differently than in common near or far sightedness\, or does it just cause general blurriness? \n57:58 We’ve been using an optometrist regularly (quarterly) for our young child\, they use a slit lamp\, should we switch to an ophthalmologist? Are there any long term side effects from slit lamp check ups? \n59:50 Based on your experience\, do you have any help for parents wanting to help their kids at these appointments and how did you handle eye drops as a kid? \n1:01:48 When my daughter is off her biologics medications\, she often gets uveitis\, when she goes back on her medication\, it clears up. From the medical perspective\, with the introduction of biologic medication\, have you seen the number and degree of uveitis actually go down? \n1:04:22 Have there been studies about the role of nutrition and uveitis? \n 1:06:06 The use of steroids. Are steroids drops the only thing keeping uveitis at bay? \n1:08:52 Is monitoring for uveitis once a child has been diagnosed life long. Is it uveitis ever gone or is there a time when you stop worrying about it? \n1:12:15 What is the chance of uveitis causing blindness if not caught early and treated? \n1:13:25 What is your biggest hope for the future? \nSession Speakers:\nDr. Alan Rosenberg\, Pediatric Rheumatologist \nDr. Alan Rosenberg is a pediatric rheumatologist caring for Saskatchewan children and youth with various forms of arthritis and related rheumatic diseases. Additionally\, Dr. Rosenberg directs the activities of The Pediatric Rheumatic Disease Research and Innovation Laboratory at the University of Saskatchewan\,  which conducts a variety of projects\, including those that aim to advance knowledge about uveitis in childhood arthritis.  He also is a valued member of the Cassie + Friends community where he helps to provide the most current and evidence-based information to youth and families. \n \nBecki Zerr\, Patient Speaker \nBecki Zerr was diagnosed with Juvenile Arthritis and Uveitis at age 3. As a past patient of Dr. Alan Rosenberg\, Becki will be speaking on her own experience with Uveitis including vision loss\, treatments and advice to parents. We invite you to get to know more about Becki before the LIVE event by reading her feature story and/or listening to the breathtaking first episode of her brand new podcast\, The Blind Reality\, as she talks about her experience on the day she lost her sight.
URL:https://cassieandfriends.ca/event/uveitis/
LOCATION:Zoom
CATEGORIES:Virtual Education
ATTACH;FMTTYPE=image/png:https://cassieandfriends.ca/wp-content/uploads/2020/09/Virtual-Education_-Uveitis.png
ORGANIZER;CN="Cassie and Friends":MAILTO:brittany@cassieandfriends.ca
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20200927T163000
DTEND;TZID=America/Vancouver:20200927T183000
DTSTAMP:20260420T075718
CREATED:20200821T150006Z
LAST-MODIFIED:20201030T000809Z
UID:3942-1601224200-1601231400@cassieandfriends.ca
SUMMARY:Virtual Education: JIA 101
DESCRIPTION:On September 27th\, 2020 we launched our Virtual Education Series! Our first session – JIA 101 – led by guest speakers Dr. Roberta Berard\, Chief of Paediatric Rheumatology\, Children’s Hospital\, London Health Sciences Centre and parent Jennifer O’Shea\, London\, Ontario answered pressing audience questions regarding juvenile arthritis as they shared their expertise and experiences of this condition. \nDid you miss out on JIA 101\, looking for a refresher\, or a newly diagnosed family looking for more information on JIA? Watch the live recording below. What can you expect from JIA 101?\n\n\n\n\n\n\n\n\n\nHear from parent speaker\, Jennifer O’Shea about her family’s journey with JIA\, from being\ndiagnosed to pain management and treatments.\nDr. Berard shares information on the different subtypes of JIA\, the difference between pain\nand a flare\, and emerging research insights\nAnswers to your questions regarding medications\, treatment paths\, remission\, and more!\n\n\n\n\n\n\n\n\n\nPanel Questions\nDon’t have time to watch the full video? No problem! Below you will find all the questions our panelists were asked with the appropriate time stamp.\n• (Lily’s Journey) Q 4:00- How did we know she had arthritis\, what were the signs? \n• (DR.Bobbi Berard) 14:50-15:25 Q What is Arthritis? \n• Q 16:18- What is JIA? \n• Q 17:50-Subtypes of JIA. \n• 24:21-Kids don’t switch between categories \n• 31:41- Treatment \n• 34:50- Treatment basses on how many joints and other features. \n• 39:40-Individualized medicine in JIA. \n• 42:56-Up coming and ongoing studies in Canada. \n• 46:00 Q/A \n• Q 47:00-What does Lily understand about her condition now and how does she deal? \n• Q 48:00- Does she share with her teacher and classmates at school? \n• Q 48:55- Difference between pain and flair? \n• Q 53:07- Is there a reason why diagnoses are delayed? \n• Q 55:36- What doe Biologic mean? \n• Q 57:32- Undifferentiated subtype and how it is treated? \n• Q 59:00- Can someone have JIA and psoriatic arthritis: can you have two types at once? \n• Q 1:01:41- Is there a History of arthritis in family- is there any evidence that it can be passed on? \n• Q 1:04:34- Nutrition is there any food categories that increase inflammation? \n• Q 1:11:11- What treatments that lily had to overcome? \n• Q 1:14:55- Will kids ever grow out of arthritis? \n• Q 1:20:28- Any gifts from the journey of arthritis? \nSession speakers:\nDr. Roberta Berard\, Chief of Paediatric Rheumatology\, Children’s Hospital \nLondon Health Sciences Centre\, Ontario\nDr. Roberta Berard is an associate professor of Paediatrics at the University of Western Ontario and the chief of Paediatric Rheumatology at the Children’s Hospital\, London Health Sciences Centre in London\, Ontario\, Canada. She is also a valued member of the Cassie + Friends Medical Advisory Committee where she helps to provide the most current and evidence-based information to youth and families. To her patients\, Dr. Berard is known for her warmth and passion in providing kids and families affected by juvenile idiopathic arthritis\, uveitis\, and other rheumatic diseases with the best clinical care and treatment options possible.\n\n\n \nJennifer O’Shea\, Parent of a JIA patient: Lily\nLily was diagnosed with JIA in February of 2016. She was just 26 months old. Her Mom\, Jennifer\, remembers the day they noticed her “pain” like it was yesterday: It was Christmas morning in 2015. Jennifer had taken her out of her crib to go downstairs to see what Santa had left. But instead of opening presents\, Lily just stood there and cried. She couldn’t and wouldn’t move. \nOver the next 2 months\, they made trips to their GP\, ER\, pediatric ortho\, and got x-rays\, chiro\, massage therapy and more. Finally\, they were seen in pediatric rheumatology (where they met the one and only Dr. Berard) and were given an answer to what was causing Lily’s debilitating pain – JIA subtype Polyarticular. She had more than 5 joints affected when diagnosed. \n \nThroughout the last four years\, they have made many trips to LHSC to see Dr. Berard for blood work\, x-rays\, MRIs\, and numerous cortisone injections. They consistently feel like Lily is getting the best care in the world and that someday soon she will be able to be in complete remission\, meaning being pain-free with no medication. Regardless of her appointment\, Lily always goes in with a positive attitude and makes her nurses and Dr. Berard smile upon every visit.  According to Jennifer\, Lily is “a serious little warrior” who they are “so very proud of”. \n  \nLooking to learn more about JIA? Check out our “About JIA” page for additional information.
URL:https://cassieandfriends.ca/event/jia101/
LOCATION:Zoom
CATEGORIES:Virtual Education
ATTACH;FMTTYPE=image/png:https://cassieandfriends.ca/wp-content/uploads/2020/08/Virtual-Education_-JIA-101-1.png
ORGANIZER;CN="Cassie and Friends":MAILTO:brittany@cassieandfriends.ca
END:VEVENT
END:VCALENDAR