One of the hardest and most nerve-wracking decisions for children and teens with juvenile arthritis (also called juvenile idiopathic arthritis) and their parents is deciding when to stop medicines.
The doctors from Pediatric Rheumatology at the BC Children’s Hospital in Vancouver, BC, Canada are working with other researchers based at Rutgers University (NJ) and from across North America, to better understand what matters most to you and your family when thinking about stopping medicines. We hope your will take their short survey to help families and rheumatologists communicate better about stopping medicines.
The survey may be found here. This survey is based on recent interviews with young people with juvenile arthritis and their parents. The survey takes about 10 minutes and is open to parents and young adults with juvenile arthritis. Young people between ages 13 and 17 may take a separate, shorter survey after their parents give permission.
If you are interested in learning more about this research, please click here or contact the BC Children’s Hospital Pediatric Rheumatology Research Team at 604-875-2000 ext. 5091 or RheumResearch@phsa.ca