Seeing Possibilities after Diagnosis: a Uveitis Story

By |October 24th, 2023|About JIA, Advice, Advocacy, blog, CREW, Rare Disease, Sask Stories, Stories, Uveitis|

Throughout my life I have been granted many titles; mom, wife, daughter, registered nurse, and writer are just a few. These are the titles that are associated with my name. I could be described as outgoing, humorous, modest, and perhaps kind too. These would be some characteristics that people from a distance would use [...]

Lily’s Journey to Diagnosis, Methotrexate, and Finding A Community of Support

By |October 19th, 2023|Injection, JIA, Medication, methotrexate, newly diagnosed, School, School Toolkit, TMJ, Uncategorized|

Meet Lily. One morning, at the young age of 2, our daughter Lily woke up limping and her left knee looked slightly swollen. She didn't seem to show that she was in pain, but was refraining from putting weight on her left leg. We had no idea what happened and didn't recall any [...]

Mental Health Workgroup

By |October 17th, 2023|Advocacy, Mental Health, Mental Health (For Youth), Uncategorized|

National Pediatric Rheumatology Mental Health Workgroup Cassie + Friends has led the formation of a new workgroup on Pediatric Rheumatology Mental Health to improve mental health care and outcomes for children with rheumatologic diseases. The goal of this Mental Health Workgroup is to develop strategies to improve research, care, and outcomes about mental [...]

OPT-JIA Premedication Trial

By |October 17th, 2023|blog, Current Research, Future Research, Injection, JIA, Medication, Research|

When I first heard of the medication Ondansetron, I couldn’t help but think about how its name sounded like a character from the Transformers movies. While this medication doesn’t fight space aliens or have a special effects budget, it does hold the capacity to TRANSFORM lives. How might you ask?Methotrexate is a [...]

Managing JA through Movement: How Ryan’s Gym Routine Helped Him to Build Physical (and Mental) Health and Lifted His Disease Management to the Next Level

By |October 3rd, 2023|Mental Health, newly diagnosed, Physical Activity, School Toolkit, Uncategorized|

"Working out and going to the gym helped me regain my physical ability but also my confidence, energy and overall mental wellbeing." - Ryan Dekker, Young Adult Living with JA As someone who grew up with an active lifestyle (and plenty of energy), finding a way to stay active [...]

C+F Inventing Room: Reinventing the Injection Experience for Kids and Families Affected by JA and other childhood rheumatic diseases in Canada

By |August 31st, 2023|Advice, Advocacy, blog, Injection, Medication, Past Events|

Inspired by the Roald Dahl Charity’s Marvellous Nurse Inventing Rooms, on August 23rd, we hosted our very own C+F Inventing Room to ask the community and together envision what our C+F Injection Coping Kits should include. With the help of medical experts, parents and youth, we dove in and got to work! We started [...]

Hope For Harley

By |July 13th, 2023|Uncategorized|

Meet Harley. In December 2022, after four long months of doctor’s appointments, seeing different specialists, testing and bloodwork, our sweet Harley was diagnosed with polyarticular juvenile idiopathic arthritis, with 34 affected joints. She was just a few weeks shy of turning 2.5 years old. This diagnosis came after several months of watching our [...]

Youth Story: My experience with JIA and finding Cassie + Friends

By |June 28th, 2023|blog, fundraising, JIA, movement, Past Events, Physical Activity, Stories, Uncategorized|

"Throughout all of these experiences that I have had with Cassie + Friends, there is one throughline: Understanding. Understanding is a concept not to be underestimated." Meet Ciara. It was after after my body couldn’t row anymore, my hands couldn’t hold the pencil, my joints ached in pain, and after my diagnosis of [...]

Highschool, Football, & Back Pain: Ryan’s Story

By |June 23rd, 2023|JIA, newly diagnosed, Stories, Teen Transitions, Uncategorized|

"Explaining this to fellow highschoolers was difficult, often times just resulting in being the butt of the joke. It was hard finding someone who understood and could relate." Meet Ryan. I first started noticing symptoms as early as age 12. At that time, many just advised me that I was going through some growing [...]

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