November 2023

Mutlu Yilmaz: An RBC Intern to Team C+F Family Member

By |November 21st, 2023|blog, Stories, Uncategorized|

I graduated from the University of British Columbia in 2022 with a Bachelor of Science in Biology, with a focus in Genetics and Evolution. Shortly after graduating and working in a laboratory, I came to the realization I can make a bigger impact in healthcare and biotechnology by leveraging my scientific expertise to [...]

October 2023

Lily’s Journey to Diagnosis, Methotrexate, and Finding A Community of Support

By |October 19th, 2023|Injection, JIA, Medication, methotrexate, newly diagnosed, School, School Toolkit, TMJ, Uncategorized|

Meet Lily. One morning, at the young age of 2, our daughter Lily woke up limping and her left knee looked slightly swollen. She didn't seem to show that she was in pain, but was refraining from putting weight on her left leg. We had no idea what happened and didn't recall any [...]

Mental Health Workgroup

By |October 17th, 2023|Advocacy, Mental Health, Mental Health (For Youth), Uncategorized|

National Pediatric Rheumatology Mental Health Workgroup Cassie + Friends has led the formation of a new workgroup on Pediatric Rheumatology Mental Health to improve mental health care and outcomes for children with rheumatologic diseases. The goal of this Mental Health Workgroup is to develop strategies to improve research, care, and outcomes about mental [...]

Managing JA through Movement: How Ryan’s Gym Routine Helped Him to Build Physical (and Mental) Health and Lifted His Disease Management to the Next Level

By |October 3rd, 2023|Mental Health, newly diagnosed, Physical Activity, School Toolkit, Uncategorized|

"Working out and going to the gym helped me regain my physical ability but also my confidence, energy and overall mental wellbeing." - Ryan Dekker, Young Adult Living with JA As someone who grew up with an active lifestyle (and plenty of energy), finding a way to stay active [...]

September 2023

July 2023

Hope For Harley

By |July 13th, 2023|Uncategorized|

Meet Harley. In December 2022, after four long months of doctor’s appointments, seeing different specialists, testing and bloodwork, our sweet Harley was diagnosed with polyarticular juvenile idiopathic arthritis, with 34 affected joints. She was just a few weeks shy of turning 2.5 years old. This diagnosis came after several months of watching our [...]

June 2023

Youth Story: My experience with JIA and finding Cassie + Friends

By |June 28th, 2023|blog, fundraising, JIA, movement, Past Events, Physical Activity, Stories, Uncategorized|

"Throughout all of these experiences that I have had with Cassie + Friends, there is one throughline: Understanding. Understanding is a concept not to be underestimated." Meet Ciara. It was after after my body couldn’t row anymore, my hands couldn’t hold the pencil, my joints ached in pain, and after my diagnosis of [...]

Highschool, Football, & Back Pain: Ryan’s Story

By |June 23rd, 2023|JIA, newly diagnosed, Stories, Teen Transitions, Uncategorized|

"Explaining this to fellow highschoolers was difficult, often times just resulting in being the butt of the joke. It was hard finding someone who understood and could relate." Meet Ryan. I first started noticing symptoms as early as age 12. At that time, many just advised me that I was going through some growing [...]

April 2023

Special Call for Members: National Work Group on Pediatric Rheumatology Mental Health

By |April 22nd, 2023|Mental Health, Uncategorized|

Cassie + Friends is leading the formation of a new workgroup on Pediatric Rheumatology Mental Health to improve mental health care and outcomes for children with rheumatologic diseases. The workgroup will be led by: Dr. Andrea Knight, Pediatric Rheumatologist, The Hospital for Sick Children + Canada Research Chair in Mental Health and Chronic Disease [...]

January 2023

Medication Update for Canadian Pediatric Rheumatology Patients

By |January 11th, 2023|Medication, Uncategorized|

All of these biologic changes are stressful and confusing! Over the past year, the landscape of biologic treatments available, and coverage for these treatments for children with JIA and other rheumatic diseases has changed. The biggest changes have been a shift to coverage of biosimilar treatments in many provinces, biologic shortages, and phasing out [...]

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