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So far debbiesetton has created 35 blog entries.

Please Help: Our Canakinumab campaign has reached the Ministry of Health

By | December 11th, 2017|Uncategorized|

Cassie and Friends Society, in partnership with Arthritis Consumer Experts, is leading a call for the BC Government to drastically improve the outlook of children with SJIA by allowing reimbursement coverage for canakinumab for the small number of children who need it. Our campaign for equitable access has now reached the media, Premier John Horgan and Minister [...]

Connect + Soar: Family Day 2017 Conference Program

By | September 10th, 2017|Uncategorized|

Our annual Family Day conference for Juvenile Arthritis and other rheumatic diseases is just around the corner - and we can't wait! On Saturday, September 16th, we'll welcome over 80 families and 350 attendees to enjoy a day of connection, learning and fun! Interested to know what's in store? Check out our Conference Program below! [...]

RESEARCH: What matters to you most when thinking about stopping medicines?

By | August 25th, 2017|News|

One of the hardest and most nerve-wracking decisions for children and teens with juvenile arthritis (also called juvenile idiopathic arthritis) and their parents is deciding when to stop medicines. The doctors from Pediatric Rheumatology at the BC Children’s Hospital in Vancouver, BC, Canada are working with other researchers based at Rutgers University (NJ) and from [...]

It’s Just Arthritis, Right? One Mom’s JIA Story

By | June 13th, 2017|Uncategorized|

When my daughter was just two years old, our family received some shocking news: the pain and swelling she’d been complaining about in her left wrist was not a simple sprain or broken bone but, in fact, the result of a chronic, autoimmune disease called Juvenile Idiopathic Arthritis (JIA).    To say that my husband [...]

All You Need to Know About Race Day – Sunday, June 25, 2017

By | June 13th, 2017|Uncategorized|

SPECIAL REQUEST: We're asking all of our 5km runners to meet at the Cassie & Friends booth in Charity Village (see below for location) between 9:00-9:15am so that we can all head to the starting line together for a 9:30am start time. Let's show everyone that JA matters by standing together in our C&F team shirts. [...]

Fundraising for your run

By | June 5th, 2017|Uncategorized|

Asking someone for money is not an easy thing to do! Here are some tips to make your Scotiabank Charity Challenge fundraising for Team Cassie & Friends a little less stressful. Start talking! Before making the big “ask,” start by telling everyone (your family, friends, teachers, etc) about what you plan to do and why [...]

Family & Friends Meet-Up and Hike in Deep Cove

By | May 29th, 2017|News|

On Sunday, May 28, 2017, we hosted our first-ever Cassie & Friends' family meet-up and group hike. Our leaders, Adrienne Dalla-Longa and Allison Brennan, both young adults who live with JIA, led an eager group of kids, parents, grandparents and siblings up to a spectacular viewing spot - Quarry Rock in Deep Cove! This event offered [...]

Fundraising with Friends

By | May 29th, 2017|News|

Fundraising as a group is definitely more enjoyable and allows you to fundraise in many different ways while also encouraging and supporting one another. Check out our top three fun and exciting ways kids are fundraising for Team C&F in the Scotiabank Charity Challenge with their friends. 1. Recycle People have tons of items in their [...]